Myth or Fact? Common Mesothelioma Misconceptions

People may have many mesothelioma misconceptions. They may think it’s a type of lung cancer, only affects asbestos workers and has few treatment options. But mesothelioma is a distinct form of cancer. It can affect anyone and has more treatments than ever. Keep reading to clear up other common misconceptions.

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Misconceptions About Mesothelioma as a Type of Cancer

Because mesothelioma is so rare, many people misunderstand what it is and how it develops. Today, there are many myths about causes, risk factors, who can get it and what type of cancer it is.

Clearing up this confusion helps patients and their loved ones better understand mesothelioma. For people with a history of asbestos exposure, having the facts may encourage earlier checkups. Telling a doctor as soon as symptoms appear can make a big difference.

7 Common Myths & Facts: Mesothelioma

#1: Mesothelioma, lung cancer and asbestosis are all the same lung disease.

Verdict: Myth
Mesothelioma, lung cancer and asbestosis are all different diseases. Mesothelioma cancer develops in the lining around the lungs, abdomen, heart or testicles. This is different than lung cancer, which develops inside the lungs. Asbestosis is a chronic lung disease that develops from scarring of the lung tissue. It may develop before asbestos cancers, including mesothelioma.

#2: Mesothelioma is the only disease caused by asbestos exposure.

Verdict: Myth
Mesothelioma is caused by asbestos exposure, but other conditions are, too. Non-cancerous conditions include asbestosis, pleural thickening, pleural plaques and chronic obstructive pulmonary disease (COPD). Other cancers definitively linked to asbestos include lung, ovarian and laryngeal cancer. Research suggests a possible connection between asbestos exposure and some other cancers.

#3: Mesothelioma can lie dormant for many years.

Verdict: Myth
Mesothelioma doesn’t lie dormant like shingles and some other conditions. But this cancer does have a long latency period. This means symptoms often don’t show up until 10 – 50 years after asbestos exposure. Rather than lying dormant, cell damage and inflammation quietly build up for decades. Over time, these injuries cause cancer. This is one reason why mesothelioma may be diagnosed at later stages.

#4: Only certain people, like older men or long-term asbestos workers, are at risk of mesothelioma.

Verdict: Partially true
Mesothelioma is not limited to these groups of people. It’s true that the majority of mesothelioma cases are diagnosed in men over 65 who held asbestos jobs. Key factors here are this cancer’s slow development and frequent workplace exposures. But regardless of age, gender or occupation, anyone can develop mesothelioma after being exposed to asbestos.

#5: Short-term or unknown asbestos exposures won’t hurt me.

Verdict: Myth
No amount of asbestos exposure is safe. Even brief or unnoticed exposure can lead to mesothelioma decades later. However, research indicates short-term exposure presents a lower risk. Longer and more intense exposures are more likely to cause mesothelioma and other asbestos diseases.

#6: Other things, like smoking, can cause mesothelioma.

Verdict: Myth
Smoking has not been shown to cause mesothelioma. According to research, asbestos exposure is the only proven cause. However, smoking may affect how the body responds to asbestos. Smokers who are exposed to asbestos may have a higher risk of developing lung cancer. This makes asbestos even more dangerous for smokers.

#7: Asbestos fibers can be removed from the lungs.

Verdict: Myth
No methods or procedures have been successful in removing asbestos fibers from the lungs. Once asbestos fibers are embedded, the body often cannot break them down or remove them. These fibers can stay lodged in tissue for life, causing inflammation and scarring. This may eventually lead to diseases like asbestosis, lung cancer or mesothelioma.

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Misconceptions About a Mesothelioma Diagnosis

When it comes to diagnosis, some common myths can add even more confusion and stress. Patients may fear that mesothelioma means only a few weeks or months to live. They may be confused about the diagnostic process and wonder about second opinions.

A better understanding of a mesothelioma diagnosis can help patients feel more informed and empowered. It may ease some worries and clarify key points that matter in future steps, like treatment.

7 Common Myths & Facts: Mesothelioma Diagnosis

#1: Early detection of mesothelioma is difficult.

Verdict: Partially true
Mesothelioma can be hard to catch early because many symptoms are shared with more common illnesses. They usually appear decades after exposure, which can also hide the connection. However, advances in detection methods are improving the odds of early diagnosis. It’s also crucial to tell a doctor if you suspect past asbestos exposure. They can help watch for early symptoms and run tests as needed.

#2: If I have mesothelioma, my family or children may also be at risk.

Verdict: Fact
Family members may be at risk if they experienced secondary asbestos exposure. This occurs when asbestos workers unknowingly bring fibers home on their person or clothing. As a result, their loved ones are at risk, even if they never worked with asbestos directly. Someone who experiences secondary exposure may later develop mesothelioma.

#3: Mesothelioma is contagious or runs in families.

Verdict: Mostly false
Mesothelioma is not contagious and does not spread from person to person. The only definitive cause of mesothelioma is asbestos exposure. This means patients cannot infect others through contact or germs. Family members may be at risk of secondhand asbestos exposure, which can cause illnesses. In extremely rare cases, mesothelioma may appear to run in families. This happens when close relatives share a specific cancer syndrome.

#4: Mesothelioma misdiagnoses are possible, so I should get a second opinion.

Verdict: Partially true
It isn’t unusual for mesothelioma to be misdiagnosed at first. This is because it’s rare and similar to other common conditions. However, once confirmed by a mesothelioma specialist with appropriate tests, the diagnosis is usually accurate. Seeking a second expert opinion can still provide reassurance and clarity.

#5: A mesothelioma diagnosis, especially with an advanced stage, has a short life expectancy.

Verdict: Partially false
It is true that mesothelioma is a serious cancer that leaves some patients with only months to live. But treatment advances have made strides in survival. Cutting-edge treatments include immunotherapy, chemotherapy and surgery, often combined in some way. For many patients, the right treatment can help them live longer than expected and with a better quality of life. Even in advanced stages, new therapies and clinical trials are extending survival and offering renewed hope.

#6: If I have mesothelioma, it’s important that I stay positive all the time.

Verdict: Myth
While a hopeful outlook can help with coping, no one can stay positive all the time. A mix of feelings is only natural. Mesothelioma brings real physical and emotional challenges, and it’s normal to feel fear, sadness or frustration. Support groups, therapy and honest talks with loved ones can offer comfort. They can be far more valuable than “toxic positivity.”

#7: There are no forums or organizations where I can talk to people who understand what it’s like to have mesothelioma.

Verdict: Myth
Mesothelioma may be rare, but there are many ways to connect with other patients and families. You can find organizations, advocacy groups and online forums for the mesothelioma community. These spaces can provide shared experiences, emotional support and practical resources. This may help people feel less alone as they navigate life with this cancer.

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Misconceptions About Mesothelioma Treatment

There are many misunderstandings about treatment options for mesothelioma. Patients may worry they have limited options that aren’t very effective. In reality, mesothelioma treatments have improved significantly over time.

Despite mesothelioma being rare, doctors can consider a wide range of treatments. And researchers continue to develop promising treatments that offer better outcomes, like extended patient survival. Having these facts can help patients and their loved ones make informed treatment choices.

7 Common Myths & Facts: Mesothelioma Treatment

#1: Mesothelioma has no good treatment options.

Verdict: Myth
Mesothelioma may seem harder to treat because of its rarity. But many effective options can offer real benefits. The right treatment plan can slow progression, extend survival and improve quality of life. Surgery, chemotherapy and immunotherapy are well-established and have shown success with mesothelioma. Clinical trials continue to test promising new treatments and refine existing ones.

#2: Chemotherapy is the only treatment option for mesothelioma, and it will only make me sicker.

Verdict: Myth
Chemotherapy is one treatment for mesothelioma, but it’s not the only one. Surgery, immunotherapy, combination treatments and clinical trials are also options. Chemo may cause side effects, but modern approaches can help manage them. Many chemotherapy patients find improved survival and symptom relief possible.

#3: If I undergo pleurocentesis or paracentesis, I will not have to do it again.

Verdict: Often false
Procedures like pleurocentesis or paracentesis can relieve fluid buildup and ease symptoms. But they don’t stop the fluid from returning, so patients often need multiple rounds. These procedures address a common mesothelioma symptom, so they can offer relief and comfort. But doctors can explain how often it may be needed for best results.

#4: Alternative treatments can't help manage mesothelioma.

Verdict: Myth
Alternative therapies have not been shown to cure mesothelioma. But some can offer benefits like easing symptoms and improving quality of life. Popular options include acupuncture, massage, meditation and nutritional support. Your doctor can suggest which may be most effective and suited with your standard treatment plan.

#5: Insurance or Medicare/Medicaid won't cover my treatment costs.

Verdict: Depends on your personal situation
Many mesothelioma treatments are covered to some degree by insurance and Medicare/Medicaid. Coverage levels vary based on individual plans. Patients may also qualify for financial aid or legal compensation. Exploring all options can help cover treatment costs. Qualified mesothelioma legal teams can explain which options patients may be eligible for.

#6: Mesothelioma cannot be cured.

Verdict: Fact
There’s no cure for mesothelioma yet, but researchers are seeking one. And many treatments continue to improve. While there is no cure, some people are considered mesothelioma survivors. In some cases, they have survived years or decades beyond their initial prognoses. Since there is a chance of remission, they aren’t truly cured. But these stories offer hope for many.

#7: Clinical trials are hard to get into.

Verdict: Myth
Many patients are eligible for mesothelioma clinical trials, and researchers are often actively recruiting participants. Trials can provide access to cutting-edge treatments, additional monitoring and expert care. This makes them a valuable option for many patients. If you’re interested in clinical trials, you can discuss them with your doctor. They can make recommendations and connections as needed.

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Misconceptions About Legal Action for Mesothelioma

Many patients hesitate to explore mesothelioma litigation because of commonly held myths. People worry a lawsuit will take too long, cost too much or require court appearances. In truth, lawyers handle most cases for clients outside the courtroom. They work to ensure patients can focus on treatment, recovery and family time.

It’s important to know that mesothelioma patients and their loved ones have rights. Depending on the situation, they may qualify for different types of compensation. Understanding the reality of legal action allows patients to choose what best supports their needs.

7 Common Myths & Facts: Mesothelioma Litigation

#1: Pursuing legal action takes years and is too expensive. It's not worth it.

Verdict: Myth
Litigation can be relatively quick and easy for clients. Mesothelioma lawsuits are often resolved through settlements rather than lengthy trials. Legal teams handle most details, and clients usually don’t pay upfront. With experienced asbestos lawyers, pursuing compensation can be manageable and worthwhile. It often provides peace of mind by helping with medical bills and other expenses.

#2: It’s too late to file a lawsuit because my exposure was long ago.

Verdict: Myth
Even if asbestos exposure occurred many years ago, you may still have legal options. Statutes of limitations vary by state based on the date of diagnosis rather than when you were exposed to asbestos. In fact, mesothelioma’s latency period means exposure cited in most lawsuits happened decades ago. An experienced asbestos attorney can explain your rights and filing timelines.

#3: If the company is bankrupt or sold, I have no legal options.

Verdict: Myth
Even if the company responsible has gone bankrupt or been sold, you may still have legal options. Many bankrupt asbestos companies are still compensating victims through their asbestos trust funds. The company may be owned by another that is now liable for past exposures. Legal teams can identify all potential compensation options for mesothelioma claims.

#4: I’ll hurt a good employer by filing a lawsuit.

Verdict: Myth
Filing a mesothelioma lawsuit holds companies accountable for knowingly harming workers. Many companies knew they were exposing workers to asbestos and actively ignored or hid those risks. Some also chose to save money by not providing adequate protection. Legal action is about seeking justice and compensation for pain or suffering. It doesn’t target innocent employers who didn’t know better.

#5: A lawsuit will cost me my pension or veteran benefits.

Verdict: Myth
Filing a mesothelioma lawsuit does not automatically affect your pension or veteran benefits. This is true even if your claim or lawsuit is against the company with the pension. Legal compensation is separate, and attorneys work to keep other benefits the same despite awards or settlements. This helps patients maintain financial security and the benefits they’ve earned through work or service.

#6: Everyone will know I sued. I might have to testify and it could be in the newspaper.

Verdict: Myth
Mesothelioma lawsuits are often resolved through confidential settlements. Personal information, amounts and other details are protected. Patients rarely need to testify in court, and most cases do not appear in the news. Legal teams handle the process discreetly, allowing patients to focus on their health. Clients typically answer a short list of questions, and lawyers handle the rest.

#7: Lawyers and legal websites only care about making money.

Verdict: Myth
Most mesothelioma lawyers genuinely want to help patients and families, not just earn money. They guide clients, connecting them to top doctors and cancer centers. They also support the mesothelioma community through awareness efforts and donations. A trustworthy lawyer will invest time and effort into helping their client. Many clients express deep appreciation for their mesothelioma lawyers.

“It was mid-morning the first time I talked to my law firm, and the voice on the phone was filled with compassion and understanding. We talked about how I had been exposed to asbestos by companies that knew they were making people sick. When we hung up the phone after almost an hour, I felt like finally, someone was on my side.”

Heather Von St. James

20 Pleural Mesothelioma Survivor

Knowing the facts about mesothelioma can bring clarity and peace of mind. If you still have questions or need support, we’re here for you. Our team can help with anything from understanding treatment to explaining your legal options.

Linda is the editor in chief at Mesothelioma.com.

Written by

Linda Molinari Editor in Chief

Linda has spent more than 15 years helping and advocating for asbestos victims. By overseeing all content on Mesothelioma.com, she strives to help patients and their families however possible.

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Written by

Linda Molinari Editor in Chief

Reviewed by

Katy Moncivais, PhD Medical Editor

Katy Moncivais, PhD, has more than 15 years of experience as a medical communicator. As the Medical Editor at Mesothelioma.com, she ensures our pages and posts present accurate, helpful information.

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Reviewed by

Katy Moncivais, PhD Medical Editor

Mesothelioma Myths & Misconceptions

Connect With a Top Mesothelioma Doctor

Misconceptions About Mesothelioma as a Type of Cancer

7 Common Myths & Facts: Mesothelioma

Resources for Mesothelioma Patients

Connect With a Top Mesothelioma Doctor

Locate a Mesothelioma Cancer Center

Financial Assistance to Help With Treatment

Misconceptions About a Mesothelioma Diagnosis

7 Common Myths & Facts: Mesothelioma Diagnosis

Connect With a Top Mesothelioma Doctor

Misconceptions About Mesothelioma Treatment

7 Common Myths & Facts: Mesothelioma Treatment

Connect With a Top Mesothelioma Lawyer

Misconceptions About Legal Action for Mesothelioma

7 Common Myths & Facts: Mesothelioma Litigation

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