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Dealing with “Scanxiety” at My Annual Mesothelioma Checkup

  • Author: Heather Von St. James
  • Date: 11/15/2016

Heather at Baylor 2016

No matter how good I feel on a day-to-day basis, every six months, the reality of being a long-term cancer survivor comes crashing back. Even though I’m going to be celebrating 11 years since my diagnosis on November 21, I still get uneasy when the time comes around for me to get on a plane, head to Houston for my scans and to see Dr. Sugarbaker.

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Fall Mesothelioma Awareness: Meso Foundation Symposium

  • Author: Heather Von St. James
  • Date: 11/1/2016

Heather and John Panza

September was such a jam-packed month of mesothelioma awareness activities, that it’s now taken me more than a month to even process it all and get it all written down. In addition to participating in Mesothelioma Awareness Day on September 26th, I went to three different events throughout the course of the month. You can read about my experiences at the Kayaking 4 Meso and Miles for Meso events.

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Fall Mesothelioma Awareness: Miles for Meso

  • Author: Heather Von St. James
  • Date: 10/26/2016

Heather Von St. James at Miles 4 Meso

September is filled with a lot of wonderful opportunities to support mesothelioma awareness through fundraising events and gatherings across the country! In my last post, I wrote about how I joined the Kayaking 4 Meso event in Upstate New York. In this post, I’m going to share my experience with the Miles for Meso event halfway across the country in Illinois.

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Fall Mesothelioma Awareness: Kayaking 4 Meso

  • Author: Heather Von St. James
  • Date: 10/20/2016

Kayaking for Meso

I love fall...especially September, but for more reasons that just the cooler weather and leaves changing color. September is a month that is full off mesothelioma awareness and fundraising events all over the country!

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How One Mesothelioma Survivor Deals With Survivor's Guilt

  • Author: Heather Von St. James
  • Date: 8/17/2016

I learned early on in my cancer treatment what a cruel, unfair thing cancer can be. It doesn’t care who you are, how old you are, or how much money you do or don’t have. Cancer has one purpose, to destroy the host, no matter who that host is – and many times, it succeeds.

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5 Things Every Advocate Should Remember

  • Author: Heather Von St. James
  • Date: 7/6/2016

A strange thing happened to me during my cancer treatment: I had the strong desire to help people, to give back, to inspire. I wanted to be an advocate.

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Resources for Mesothelioma Patients and their Families

The Real Costs of Mesothelioma and Asbestos Exposure

  • Author: Heather Von St. James
  • Date: 5/24/2016

Real Cost of Cancer

When one hears the word “mesothelioma,” everyone immediately thinks of the commercials on TV: “If you or a loved one has been diagnosed with mesothelioma, a deadly cancer caused by asbestos exposure… “ and then they think everyone who gets this cancer is automatically wealthy because of a lawsuit. Well, I’m here to set that record straight.

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Finding Purpose After Losing Everything

  • Author: Heather Von St. James
  • Date: 4/19/2016

Now what?

That’s what I asked myself as I sat in my car in the parking lot of the cancer center. I had just finished my last radiation treatment, and for the first time in almost a year, I had no more chemotherapy or radiation treatments to go to. I was done. And I was lost.

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Making Strides for Mesothelioma Awareness Day 2015

  • Author: Heather Von St. James
  • Date: 10/27/2015

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Mesothelioma Awareness Day, established by Mesothelioma Applied Research Foundation volunteers in 2004, has been the driving force behind the movement to bring more attention and funding to mesothelioma.

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My Decade of Survivorship

  • Author: Heather Von St. James
  • Date: 5/26/2015

Heather Von St. James

Today is a day I was never meant to live, this year was one I wasn’t supposed to see, this life is one I wasn’t supposed to have.

No one ever prepares you to fight for your life. When your reality becomes just that, learning that your existence is not guaranteed, your world becomes something you could have never imagined. I always wanted to be a mother, and after marrying the most amazing man, I was ready to be a parent. We would be a new family. I would become a mother, and find a new kind of unconditional love. After giving birth to our daughter, I was overjoyed. That joy suddenly faded after losing weight and strength in my body, feeling that I could not physically breathe. I was concerned, but attributed the weight loss to my recent pregnancy. Finally feeling that something more was actually to blame, I saw a doctor, and was told I had mesothelioma, a rare cancer caused by exposure to asbestos. I was given 15 months to live. That was 10 years ago. Throughout the last ten years I have devoted my life to spreading awareness of the dangers of asbestos, sharing hope, and supporting others on their path towards a cancer-free life.

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About Heather

  • Wife of Cameron Von St. James and mother to Lily Rose
  • Pleural mesothelioma survivor
  • Treated by Dr. David Sugarbaker, world renowned mesothelioma expert and thoracic surgeon
  • Self proclaimed “Poster child for hope after mesothelioma” for those suffering from asbestos disease
  • Continues to live with strong faith, abundant gratitude and an unbeatable will to live each day

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December 02, 2016
Jackie Clark

Recapping National Family Caregivers Month

Upcoming Events

December 04, 2016
Vienna, Austria

17th IASLC World Conference on Lung Cancer

“The IASLC World Conference on Lung Cancer (WCLC) is the world’s largest meeting dedicated to lung cancer and other thoracic malignancies.”


December 06, 2016
Baltimore, MD

National COSH Conference

“Don’t miss the premier U.S. gathering for health and safety activists.”

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