This past weekend, members of the Mesothelioma Cancer Alliance had the pleasure of attending the 12th Annual International Asbestos Awareness and Prevention Conference in Washington D.C. The weekend conference (April 8-10) included 40 speakers from 10 different countries — countless family members, workers, individuals and organizations affected by asbestos. As a participant in the event, the Mesothelioma Cancer Alliance live tweeted the presentations to connect the insights of the conference to our audience on social media. The theme of the 2016 conference, “Where Knowledge and Action Unite,” focused on medical advancements, prevention techniques, and global advocacy.
MCA Staff Writers
Presenting Up-to-Date Mesothelioma Topics
Because there is currently no cure for cancer, one of the most important things we can do as individuals and as a society is to promote research and development efforts that are looking at alternative and emerging cancer treatments, in the hopes that one day they will lead to a cure.
Earlier this year, Termeh Khoshniat was awarded the Mesothelioma Cancer Alliance Scholarship based on the essay she wrote about being a caregiver for her mother, who was diagnosed with Stage 2 mesothelioma when Termeh was only 16 years old.
In July 2015, a 32-year-old bright and budding L.A.-based comedian was told he had one year left to live. Diagnosed with stage 4 peritoneal mesothelioma, Quincy Jones, a name the comedian shares with the famous music producer, realized he couldn’t wait any longer to leave a legacy.
A recent cancer diagnosis can result in feelings of fear and confusion. Often, patients and families feel a sense of information overload when they are first diagnosed. It’s difficult to know how to begin the most effective treatment and who to rely on for cancer care. An important place to start is by choosing a trusted physician who is an expert not just in cancer, but in the particular cancer with which you have been diagnosed. In addition, the doctor should have a reputation for taking time with patients and a quality bedside manner. Your doctor should be able to balance the latest scientific expertise, communication skills, and the ability to make you feel as comfortable as possible.
On a daily basis, students, teachers, school staff, and administrators are unknowingly exposed to a harmful carcinogen: asbestos, a continued health threat in schools today and the only known cause of mesothelioma. This naturally-occurring, carcinogenic mineral was once widely used in the construction of schools for its fire-retardant qualities.
Mesothelioma is classified as a rare disease with 3,000 people diagnosed each year. Rare Disease Day, founded by EURORDIS and the Council of National Alliances in 2008, aims to raise awareness about the impact rare diseases have on the lives of patients, and the many issues surrounding topics like research and treatment that often accompany these illnesses.
In the search for a cure and improved treatment options for mesothelioma, medical researchers continue to study what’s known as epidermal growth factor receptor (EGFR) inhibitors, which kill cancers with mutated EGFR. Mutant EGFR helps cancer cells— which are found in malignant mesothelioma— grow.