Thank you for visiting the Mesothelioma Cancer Alliance Blog. Our authors are dedicated to providing timely, informative, and inspiring articles about mesothelioma.
Twelve years ago everything seemed perfect. I was married to the love of my life, and together we had a 10-year-old daughter.
However, in 2003, my life took a sharp turn in an ill-fated direction. Alan, my husband of 20 years, had developed a slight, persistent cough, and had also lost some weight. Intuitively, I knew something was wrong. During Alan’s routine physical, an X-ray revealed a pleural effusion – fluid between the lining of the lung and the lung itself.
No matter how you define survivorship, one of the things that many survivors of mesothelioma and other deadly cancers includes developing a survivorship plan. Such plans are beneficial for the survivor, their family members and friends, as well as for doctors and other medical professionals who may be involved in providing care in the future.
We often treat our health a lot like a cat-and-mouse game: it’s not until something is wrong that we chase after it. In honor of Healthy Lung Month, and in the interest of taking a more proactive, preventative role in our health, we’re putting the spotlight on an oft-forgotten organ: the lungs.
When my wife, Heather, began her battle with cancer, I was fortunate enough to be able to be with her for her surgery in Boston. But when cancer strikes a family, life unfortunately isn’t put on pause. Having to return to work while she went through her recovery process left me feeling helpless. However, I quickly learned that just because I was far away, didn’t mean I couldn’t still care for her in a meaningful way.
This past Friday, September 25th, was the Mesothelioma Cancer Alliance’s first #MesoAwarenessDay tweet chat, when the mesothelioma community had an opportunity to share information about mesothelioma, a deadly and rare form of cancer caused by asbestos.
There’s no doubt that the health care system could use some care of its own. Although more people are being covered under health care plans than ever before, there is still a lot of opportunity to improve not only the methods by which we diagnose and treat everyday conditions and sickness, but also how we research rare and deadly diseases, such as mesothelioma.
September 26, Mesothelioma Awareness Day, is upon us. This day gives organizations like ours, the Asbestos Disease Awareness Organization (ADAO), an opportunity to educate citizens about asbestos, urge Congress to listen to the voices of the global mesothelioma community, and to harness the power of hope and awareness.
Saturday, September 26th, marks the 11th annual Mesothelioma Awareness Day (MAD), where the mesothelioma community sheds further light on this terrible disease and reflects on the evolution of their advocacy efforts. Because of days like MAD, necessary research has been able to propel medical advancement forward, improving diagnosis and treatment options for a disease that is notoriously difficult to diagnose and treat.