Recent Posts

2 0 1 4Aug07

The Importance of Support for Cancer Patients

When I was diagnosed with mesothelioma, I felt more isolated than I ever had in my life.. I was a mere 36 years young and told I had an incredibly rare cancer that, in most cases, was diagnosed in much older men. I felt utterly alone and defeated.

Continue Reading Email Tweet Share
2 0 1 4Apr24

Having Our Voice Heard - 10th Annual ADAO Conference Recap

Heather and Cam

I always credit Linda Reinstein from the Asbestos Disease Awareness Organization (ADAO) with giving me my voice. Four years ago, it was Linda who started me on this crazy journey of speaking and sharing my story with others when she approached me to speak at her conference.

Continue Reading Email Tweet Share
2 0 1 4Mar17

From Awareness Grows Hope - Kicking Off Asbestos Awareness Week 2014

Heather

Every year, 3000 people are diagnosed with mesothelioma.

In 2005, I was one of them.

I had never worked with asbestos, but my father did, and secondhand exposure as a child was enough to make me sick decades later. I was lucky, able to make a miraculous recovery through surgery. But I experienced for myself the fear, pain and suffering this disease can cause, and I believe I’ve found my calling fighting for victims of mesothelioma and other asbestos diseases.

Continue Reading Email Tweet Share
2 0 1 4Feb20

Smashing Fears & Building Traditions - Lung Leavin' Day Recap

Throw your fears to the fire

Eight years. I still find it hard to believe sometimes.

That first year—the one-year mark of Lung Leavin’ Day—it was just Cams and me, outside by a little bonfire on a freezing cold night, writing our fears on a plate. Mine had everything to do with cancer, since surgery was so fresh in my mind. I didn’t read his plate; they’re his fears to smash, not mine. When we were finished writing we both took a breath and shattered our plates in the flames. With that, a tradition was born.

Continue Reading Email Tweet Share
2 0 1 3Nov25

The November Blues

Heather & Lily

November brings out the best in many people. The spirit of Thanksgiving is everywhere; on social media, friends are posting 30 days of thankfulness. I love this idea and have participated in it many times since I have much to be thankful for. But to me November is not a month I look forward to; in fact, I pretty much dread it every year since 2005. November means winter is starting, the days are shorter, it’s colder, it’s grey and dreary, and if we don’t have snow, we have rain and fog. My yard is all soggy, brown and depressing-- quite a change from the colorful summer and fall with all my many flowers blooming.

Continue Reading Email Tweet Share
2 0 1 3Oct16

Mesothelioma Awareness Day Recap - Be a Voice for the Victims

Mesothelioma Awareness Day at the Today Show

September happens to be one of my favorite times of the year-- not only because the weather is usually picture perfect and the leaves start turning, but every year my mom and I go to New York City for Mesothelioma Awareness Day. This was our 3rd trip and each year we love it more and more. It’s becoming a tradition for my mom and I to arrive a day early, enjoy a nice dinner and get ready for the bright and early wake up time of 4:00 am to get to the plaza of the Today Show by 5:30. We get there so early to secure a good place around the barriers to be seen by the hosts. NYC at 5 in the morning is amazing, it’s actually quiet with the occasional roar of a truck engine in the distance. By the time we are allowed onto the plaza for the taping of the show, there is a line down the block of people wanting to get noticed. All of us who were there for Mesothelioma Awareness Day were dressed in our bright yellow “Cure Meso” t-shirts and grouped together so we would be noticed when the hosts of the show came around. Strength in numbers!

Continue Reading Email Tweet Share
2 0 1 3Sep11

Dying to be Heard for Mesothelioma Awareness Day

Dying to be Heard

Dying to be Heard is a statement that perfectly illustrates what is happening to mesothelioma victims.

Each year, 3,000 new people are diagnosed with mesothelioma cancer. Of those 3,000 victims, only a small percentage will live to celebrate 5 years of survival. Most live a mere 10 months past diagnosis and, during those 10 arduous months, they are dying to have their voices heard—by asbestos companies, medical research organizations, potential victims, and those who don’t know about this disease. Mesothelioma is a completely preventable disease, yet asbestos is still not banned in the US.

Continue Reading Email Tweet Share
2 0 1 3Aug12

Lily's View

Heather & Lily

My daughter Lily just celebrated her 8th birthday this month. Eight years old! At times I find it hard to believe she is already 8. Other times it seems like she should be older because she is so wise for her age. Of course we had a HUGE birthday party to celebrate, because I like to make a big deal about birthdays. I have since her first birthday, quite simply because I didn’t know if would be around to see her turn 1, let alone 8!

Continue Reading Email Tweet Share
2 0 1 3Jul19

Heartbreak and Healing

Mesothelioma survivors

The thing about cancer that no one tells you is that you are thrust into a world not only of endless doctor appointments, countless labs, CT scans, being poked literally hundreds of times until you're bruised up and down your arms, but also into a world of some of the most amazing, resilient and inspiring people you will ever know. There is also the really, really hard part very few people talk about-- the fact that a lot of those amazing people don't make it. I’ve had to say good-bye to more people in the last 7 years than I ever imagined.

Continue Reading Email Tweet Share
2 0 1 3Jun06

Living Life with Passion and Purpose

Heather & Cameron & their motorcycle

When I was in the hospital in Boston recovering from my extrapleural pneumonectomy surgery, I remember looking at Cameron, my husband, and saying to him, “when we get through all of this, we are getting a motorcycle.” I think he started dreaming about the perfect bike that night.

Continue Reading Email Tweet Share
2 0 1 3Apr29

FACTs from a Survivor: How the FACT Act Affects Mesothelioma Victims

How the FACT Act affects mesothelioma victims

I was speaking with a friend of mine recently about writing, as she's writing a urban fantasy short story, and the subject of blood types came up. You see, I always remember my blood type, B Positive, because that’s how I always strive to be. Unfortunately, sometimes I fall short of my goal. Today is one of those times.

Continue Reading Email Tweet Share
2 0 1 3Apr03

ADAO Conference 2013: A Truly Global Mission

Cam and Heather at the 2013 ADAO ConferenceCameron

This is the third time I have attended ADAO’s Annual International Asbestos Awareness Conference. I still remember how I instantly felt like family when I attended my first conference in Atlanta, GA in April 2011. I found myself at home with others whose lives had been affected by mesothelioma and asbestos. It was wonderful sharing my experiences with others and hearing their stories as well.

Continue Reading Email Tweet Share
2 0 1 3Mar15

2013 Mesothelioma Applied Research Foundation Annual Symposium

Cam & Heather at the MARF SymposiumCameron

Four years ago, Heather went to her first Mesothelioma Applied Research Foundation (Meso Foundation) symposium. That first symposium left a lasting impression and changed her life. The opportunity to meet with other mesothelioma warriors, their families, caregivers, and medical experts in mesothelioma treatment and research had a positive impact. It was the opportunity to meet with people who know what a mesothelioma diagnosis means. These new friends quickly became family.

Continue Reading Email Tweet Share
2 0 1 3Mar07

Faith Through Cancer - I am a Lighthouse

I am a lighthouse“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future."Jeremiah 29:11

This scripture was on a card sent to me by a friend shortly after he found out I had cancer. When I opened the card, and read those words, I sobbed. I sobbed because it was EXACTLY what I needed to read and needed to know, that I would be ok. It was those words that got me through some very scary times in these last 7 years. Those words were, and still are, my lifeline.

Continue Reading Email Tweet Share
2 0 1 3Feb06

Lungleavin Day 2013: Generosity Abound

Lungleavin Day plate smashing

The 7th Annual Lungleavin Day is all but a memory now. The remnants of a great night are all around; the shards of plates around the cold coals of the extinguished fire, the ice lanterns are nothing more than globes of ice, the dining room table still has the serving dishes used for the night sitting on it, all cleaned and waiting to be put in the storage bin until next year. The silent auction donations are still in their places and phone calls have been made to all the winners. This week will be spent delivering them and picking up the donations so generously made for mesothelioma research. What can't be seen is the gratitude that my husband, daughter and I have in our hearts for all of the love and support that so many have given us.

Continue Reading Email Tweet Share
2 0 1 3Jan17

F.E.A.R.

Heather & Cam on Lungleavin Day

“Courage is resistance to fear, mastery of fear, not absence of fear.”-Mark Twain

I hear it often from people, how brave I am and how much courage I have. Sometimes I just have to laugh, because, going through what I’ve been through with my mesothelioma battle, I don’t feel very brave. At times, the fear was so overwhelming, all I could do was cry out to God to help me. I would love to say that through the last 7 years, I’ve learned to conquer my fears. After all, Lungleavin Day, our celebration of the anniversary of my extrapleural pneumonectomy surgery, is all about overcoming fears. But I still have my moments, more often than I would like to admit. I have the usual fears creep in, my “scanxiety” I’ve blogged about before, little pangs of fear before I fly, but the biggest fear I struggle with is the fear of something happening to my daughter. This is something that has plagued me since she was born.

Continue Reading Email Tweet Share
2 0 1 2Dec28

Treatments, Thanks & Traditions

Lily as an elf

I love social media! Through Facebook, Twitter, and Instagram, I've been able to communicate with literally hundreds of people throughout the world. I especially love it during the holidays, because it gives me a glimpse into the traditions and lives of my new friends. Traditions are the rituals we all do year after year and carry on generation after generation without question. We just do them "because it's always been this way".

Continue Reading Email Tweet Share
2 0 1 2Oct22

Scans + Anxiety = Scanxiety: My Biannual Checkup in Boston

Scanxiety Definition

Scanxiety: Noun [skan-zi-etee]: Uneasiness waiting for ones scans after cancer treatment. ie: I get Scanxiety the week or so before I go to Boston for my check ups.

Continue Reading Email Tweet Share
2 0 1 2Sep25

Awareness Is Key

Mesothelioma Awareness Day

I've said it before, my mesothelioma cancer was all at once the worst thing and best thing that has ever happened to me. Getting the diagnoses when my baby was only 3 1/2 months old was certainly not in our plans. I planned on being a working mom, but this cancer changed all that. I get to be a stay at home mom, I get volunteer with my daughter’s school and help out when I can. I actually enjoy it far more than I thought I would. When I worked in the salon, I used to joke that they would have to pry the shears out of my cold, dead hand before I ever quit, but I guess someone had other plans for me. Some days I do miss going to work, but all I have to do is sit and read some of the comments on my blog or Facebook page to know that I am doing the right thing-- I'm making a real difference in people's lives.

Continue Reading Email Tweet Share
2 0 1 2Sep13

Of Memories and Milestones

First day of 2nd grade First day of 2nd grade!

Lily started 2nd grade this year-- 2nd grade! She’s a bright and vibrant 7 year old with a stubborn streak a mile long, and sweetness that will melt even the most bitter of hearts. I love going to ‘meet the teacher’ night and seeing how excited she gets when she walks through those doors at school. So confident and filled with hope and wonder-- she loves her school.

Continue Reading Email Tweet Share
Next >

About Heather

  • Wife of Cameron Von St. James and mother to Lily Rose
  • Pleural mesothelioma survivor
  • Treated by Dr. David Sugarbaker at Brigham and Women’s Hospital in Boston
  • Self proclaimed “Poster child for hope after mesothelioma” for those suffering from asbestos disease
  • Continues to live with strong faith, abundant gratitude and an unbeatable will to live each day

Read more about Heather »

Connect
With Heather

Google+ Twitter

Free Mesothelioma Information Packet

Receive a comprehensive mesothelioma packet free of charge within 24 hours...

Yes   No

Get Started

Featured Authors

Staff Writers

Topics

Archive

Resources

1-800-336-0086
Newest Clinical Trials, Breaking Treatment News, Top Mesothelioma Experts

Treatment Alert Program

Please fill in the form below to request FREE Mesothelioma Treatment Alert information. It will be sent to you within 24 hours.

YesNo