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French National Registry of Rare Peritoneal Surface Malignancies

Brief Summary

Despite advances in the management of and changes in clinical practice, little is known about the epidemiology, patterns of care and outcomes of rare peritoneal surface malignancies patients in France.

In order to better understand the characteristics of rare peritoneal surface malignancies and to evaluate treatment strategies, the RENAPE registry aims at the collection of data from patients presenting with a rare peritoneal surface malignancy in France. Data will be entered prospectively in a specifically designed and secured web database.

All RENAPE's centres and physicians are invited to register patients with a rare peritoneal surface malignancy diagnosis and to participate to the registry. Data will be evaluated within regular time frames, focusing on types of rare peritoneal surface malignancies, treatment modalities and patient outcomes (e.g. survival, recurrence), thereby contributing to the better understanding of these rare cancers.

Tracking Information
First Received DateJune 30, 2016
Last Changed DateAugust 18, 2017
Start DateOctober 2010
Anticipated Primary Completion DateDecember 2018
Primary Outcome Measures

Incidence of rare peritoneal surface malignancies [Time Frame: year 5]

Secondary Outcome Measures

Impact of specific treatment strategies [Time Frame: year 5]

Descriptive Information
Study TypeObservational [Patient Registry]
  • Rare Peritoneal Surface Malignancies
  • Pseudomyxoma Peritonei
  • Peritoneal Mesothelioma
  • Desmoplastic Small Round Cell Tumor
  • Psammocarcinoma
  • Primary Peritoneal Serous Carcinoma
  • Diffuse Peritoneal Leiomyomatosis
  • Appendiceal Mucinous Neoplasms
  • Other: Non interventional
Study Arms / Comparison Groups0 / 7
Recruitment Information
Recruitment StatusActive, not recruiting
Actual Enrollment2171
AgesN/A - N/A
Accepts Healthy VolunteersNo
Eligibility Criteria

Inclusion Criteria:

- Patients are eligible if they have a histologically proven rare peritoneal surface malignancy.

Exclusion Criteria:

- Histological diagnostic of peritoneal surface malignancy not confirmed

- Expected clinical follow up data not available

Administrative Information
Responsible PartySponsor
SponsorHospices Civils de Lyon
Verification DateAugust 2017
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