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Mesothelioma Awareness Day 2018: Looking Back on the Past Year

Mesothelioma Awareness Day 2018: Looking Back on the Past Year

Each year on September 26, we stop to observe Mesothelioma Awareness Day, a national event building support for the mesothelioma community, patients who are battling the rare cancer, and all of the work being done to cure the disease. On this year’s Mesothelioma Awareness Day, we’re looking back at the last year to highlight medical advances and successes, along with recent developments from the Environmental Protection Agency that could have an impact in the nation’s ongoing fight to eventually phase out asbestos use.

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Attending the 2018 Minneapolis Mesothelioma Symposium

Attending the 2018 Minneapolis Mesothelioma Symposium | Mesothelioma.com

The Mesothelioma Applied Research Foundation recently held its regional symposium in Minneapolis, and I was thrilled to only drive 10 miles to the hotel it was being held, since I live in a suburb of Minneapolis/St. Paul. Every other year, the Meso Foundation takes its “show on the road” for smaller, more intimate gatherings to spotlight regional medical facilities and healthcare professionals. As most everyone knows, we happen to have the world-renowned Mayo Clinic just minutes south of the Twin Cities.

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Fall 2018 Mesothelioma Cancer Alliance Scholarship Winner Darwin Arias

Fall 2018 Mesothelioma Cancer Alliance Scholarship Winner Darwin Arias

The Mesothelioma Cancer Alliance is pleased to announce the winner of the Fall 2018 Scholarship, Darwin Arias.

Darwin is set to begin his undergraduate career at Columbia University in the fall, with an interest in studying biology, neuroscience, or biochemistry. Throughout his academic career, Darwin has challenged himself to fill his schedule with difficult advanced placement courses and numerous extracurriculars to prepare for college and forge a path to achieve a medical career.

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Spring 2018 Mesothelioma Cancer Alliance Scholarship Winner Sirena Cordova

Spring 2018 Mesothelioma Cancer Alliance Scholarship Winner Sirena Cordova

The Mesothelioma Cancer Alliance is pleased to announce the winner of the Spring 2018 Scholarship, Sirena Cordova.

Sirena is currently pursuing graduate studies at SUNY Empire, after receiving her bachelor's degree from the college in June 2017. She became the first member of her family to graduate from college, an achievement that became more difficult than she expected as her personal life faced many traumatic events along the way.

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The Benefits of Comprehensive Support Services for Mesothelioma Families

Comprehensive Support Services for Mesothelioma Families | Mesothelioma.com

Following the diagnosis of mesothelioma, patients often feel overwhelmed. They have many questions and concerns—for themselves and for their families. Patients worry how their loved ones will cope. The International Mesothelioma Program (IMP) at Brigham and Women’s Hospital (BWH) has a dedicated support team to provide comfort, compassion, and companionship during this difficult time for the patient as well as for the caregiver, most often the spouse. The IMP support staff includes a patient liaison coordinator, a chaplain, a dedicated social worker and two trained nurses who provide post-surgery care. Social worker Beth Flanzbaum, MSW, LICSW and chaplain John Kearns work alongside patient navigator Sheryl Ann Chicoine, Thornton House Coordinator Martha Williams, and nursing liaisons Lisa Hyde-Barrett, RN and Ellie Ericson, RN. One of the physician assistants is also assigned as the mesothelioma PA every week. Together, they create a support network for mesothelioma patients and their families before, during, and after their stay at the hospital.

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Resources for Mesothelioma Patients and Their Families

Reflecting on September’s Mesothelioma Awareness Events and My Biannual Checkup

Reflecting on September’s Mesothelioma Awareness Events and My Biannual Checkup

September always proves to be a busy month for me, and this year was certainly no different! As much as I try to pace myself, it always seems as though all the things happen at once. September is usually busy for one important reason: Mesothelioma Awareness Day.

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EPA’s Asbestos Evaluation Shows Strong Support for and Against a Ban

EPA’s Asbestos Evaluation

The Environmental Protection Agency (EPA) is in the midst of a several years long process to investigate ten dangerous chemicals, including asbestos. Over a year ago, the EPA was finally given the authority to evaluate and potentially take action against chemicals that may pose an unnecessarily dangerous risk to public health and the environment with the passage of the Frank R. Lautenberg Act.

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Join The Mesothelioma Cancer Alliance in ADAO’s #ENDMeso Tweetchat

Join The Mesothelioma Cancer Alliance in ADAO’s #ENDMeso Tweetchat

Mesothelioma Awareness Day is almost here! Each year on September 26th, survivors, advocates, patients and their loved ones, experts and various organizations come together to bring awareness to mesothelioma and the mineral that causes it. Just like in years past, the Mesothelioma Cancer Alliance will be participating in the #ENDMeso tweetchat hosted by the Asbestos Disease Awareness Organization (ADAO) on Mesothelioma Awareness Day.

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Fall 2017 Mesothelioma Cancer Alliance Scholarship Winner Natalia Jaramillo

Fall 2017 Mesothelioma Cancer Alliance Scholarship Winner Natalia Jaramillo

We are pleased to announce the winner of the Fall 2017 Mesothelioma Cancer Alliance Scholarship is Natalia Jaramillo, a doctoral student specializing in clinical psychology at the University of California, Santa Barbara (UCSB).

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Mesothelioma Cancer Alliance Observes Rare Disease Day 2017

Rare Disease

February 28th, known as Rare Disease Day, offers us an opportunity to spread awareness about some of the lesser known – but just as important – diseases that often get overshadowed by more common illnesses. Although each individual disease might only affect a relatively small number of people, together rare diseases account for a rather large amount of the pain, suffering, and loss that many individuals experience on a daily basis.

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