Mesothelioma.com Resources for Patients and their Families
The MCA Blog

Scans + Anxiety = Scanxiety: My Biannual Checkup in Boston

Scanxiety Definition

Scanxiety: Noun [skan-zi-etee]: Uneasiness waiting for ones scans after cancer treatment. ie: I get Scanxiety the week or so before I go to Boston for my check ups.

Continue Reading »

Awareness Is Key

Mesothelioma Awareness Day

I've said it before, my mesothelioma cancer was all at once the worst thing and best thing that has ever happened to me. Getting the diagnoses when my baby was only 3 1/2 months old was certainly not in our plans. I planned on being a working mom, but this cancer changed all that. I get to be a stay at home mom, I get volunteer with my daughter’s school and help out when I can. I actually enjoy it far more than I thought I would. When I worked in the salon, I used to joke that they would have to pry the shears out of my cold, dead hand before I ever quit, but I guess someone had other plans for me. Some days I do miss going to work, but all I have to do is sit and read some of the comments on my blog or Facebook page to know that I am doing the right thing-- I'm making a real difference in people's lives.

Continue Reading »

Of Memories and Milestones

First day of 2nd grade First day of 2nd grade!

Lily started 2nd grade this year-- 2nd grade! She’s a bright and vibrant 7 year old with a stubborn streak a mile long, and sweetness that will melt even the most bitter of hearts. I love going to ‘meet the teacher’ night and seeing how excited she gets when she walks through those doors at school. So confident and filled with hope and wonder-- she loves her school.

Continue Reading »

I Have Cancer? Part 9: Recovery and Rediscovery

Recovery and Rediscovery

Being a parent, my biggest fear is my child getting sick. I think that is a constant fear, regardless of how old your child is. So when I was diagnosed with mesothelioma, my parents had to face that fear. I was their child, their baby, and now I was fighting for my life. Then, with me being a new mom, they had to take over my role as a parent while I was in Boston for my surgery. They were much more than Grandma and Grandpa—they were, in every sense of the word, parents to her in our absence.

Continue Reading »

The New Normal

The new normal

You hear the joking comments “Normalcy is highly overrated” and it is, until something happens to shake your foundation, and everything you have is turned upside down. For some people, it is a divorce, a break up, the loss of a loved one, but for me, it was my cancer diagnosis. I was diagnosed with malignant pleural mesothelioma—rather melodic sounding, but mostly just a deadly cancer. I fought it with everything I had and, right now, I’m doing well. At my last check up, there was no evidence of the disease. I am a 6 1/2 year survivor.

Continue Reading »

Resources for Mesothelioma Patients and Their Families

Extrapleural Pneumonectomy Surgery: My Experience

Heather smiling after surgery

There are certain words in the English language that you never dream of being a part of your every day life—words such as thoracentesis, computed tomography or, how about this one, extrapleural pneumonectomy—EPP for short. All of these words became a part of my every day vocabulary when I was diagnosed with malignant pleural mesothelioma in 2005. We heard the word cancer first. Then Mesothelioma. And finally the words extrapleural pneumonectomy.

Continue Reading »

From the Heart

My heart broke again today. Sometimes I don't know if there is anything left to break. It has been broken so many times.

When I was diagnosed, I was thrust into this alternate universe of mesothelioma. For the first year, it was all about me; my surgery, my treatment, my health. But I had met two other patients that were going through the same things, so I was not alone. It was then I became aware of so many more people suffering. Every trip to Boston, I met someone new-- the elderly couple from Utah; the too-young man from New Jersey; the handsome, young father of two vivacious boys from Texas who’s wife also happens to be a Heather. By getting to know this man and his wife, my disease became more about others and my heart grew by leaps and bounds. The love for this family from Texas forever stamped on my heart-- I celebrated every victory with them. But the cancer came back and, sadly within a year, he died. That was the first time my heart broke. I cried for days for this family. I vowed to make a difference. I vowed to be a prayer warrior. I vowed to be strong.

Continue Reading »

I Have Cancer? Part 8: "Cancer Camp"

Shannon's House Shannon's House-- or "Cancer Camp".

“Cancer Camp” is what my sister affectionately refers to the days we spent at Shannon’s House that cold February in 2006. We had a room on the first floor toward the back. It was a small room with two mostly comfortable twin beds, a huge closet and a private bathroom. I had packed a fleece blanket that my mom had made for me and brought it with to use in the hospital, and I was so glad to have it with me while I was at the house. It was a little piece of home that I had while healing. She had also made my sister one, and so we both had our blankets from mom with us for “Cancer Camp”

Continue Reading »

I Have Cancer? Part 7: My Hospital Stay

ICU Day 3 Day 3 in ICU- sitting in a chair!

The entire 11th floor of Brigham and Women’s Hospital in Boston is dedicated to thoracic patients. They have lung transplant patients, collapsed lung patients, esophageal cancer patients and, of course, extrapleural pneumonectomy or EPP patients like myself. The nurses and residents are highly skilled and know exactly what to do to care for us.

Continue Reading »

My Visit in Boston with Dr. David Sugarbaker and a Fellow Mesothelioma Patient

Dr. Sugarbaker and I Dr. David Sugarbaker and I.

On April 24th, I had my bi-annual check up in Boston with Dr. David Sugarbaker. It’s been 6 1/2 years since my diagnosis. It has been 6 years and 3 months since my subsequent surgery to have the tumor and my lung taken out—wow! I get giddy when I think about it. The few weeks before my appointments I usually suffer from what I call “Scanxiety,” or this anxiousness that comes before the scans to see if “it” came back.

Continue Reading »

< Previous Next >

Search the MCA Blog:

Mesothelioma Treatment Alert Information

Mesothelioma Treatment Alert Program

Please fill in the form below to request FREE Mesothelioma Treatment Alert information. It will be sent to you within 24 hours.

Have you or someone you know been diagnosed with mesothelioma?

Get Important Information About: