Posts about "mesothelioma"

2 0 1 5 May 26

My Decade of Survivorship

Heather Von St. James

Today is a day I was never meant to live, this year was one I wasn’t supposed to see, this life is one I wasn’t supposed to have.

No one ever prepares you to fight for your life. When your reality becomes just that, learning that your existence is not guaranteed, your world becomes something you could have never imagined. I always wanted to be a mother, and after marrying the most amazing man, I was ready to be a parent. We would be a new family. I would become a mother, and find a new kind of unconditional love. After giving birth to our daughter, I was overjoyed. That joy suddenly faded after losing weight and strength in my body, feeling that I could not physically breathe. I was concerned, but attributed the weight loss to my recent pregnancy. Finally feeling that something more was actually to blame, I saw a doctor, and was told I had mesothelioma, a rare cancer caused by exposure to asbestos. I was given 15 months to live. That was 10 years ago. Throughout the last ten years I have devoted my life to spreading awareness of the dangers of asbestos, sharing hope, and supporting others on their path towards a cancer-free life.

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2 0 1 5 Feb 26

Breathing New Life Into Lung Leavin' Day

Lung Leavin' Day 2015

Every year following Lung Leavin’ Day, I write a recap of the evening. This year I wanted to do something a little different. I know the event has a huge effect on people, and in the last couple of years people have shared their feelings about the night with me. I thought I would ask a few friends about their thoughts on the tradition and share them with you.

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2 0 1 5 Jan 8

Reflecting on the "Firsts" of 2014

Von St. James family golfing

As a society, we put a huge emphasis on our children’s “firsts”: baby’s first tooth, baby’s first steps. The first birthday, the first day of school. Oh my, how I remember that day with Lily! So many of her firsts were milestones simply for the fact that I was not supposed to be alive to see them. I treasured each of those firsts, and marked the occasions with pictures and videos. I even still have her first tooth somewhere.

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2 0 1 4 Aug 7

The Importance of Support for Cancer Patients

When I was diagnosed with mesothelioma, I felt more isolated than I ever had in my life.. I was a mere 36 years young and told I had an incredibly rare cancer that, in most cases, was diagnosed in much older men. I felt utterly alone and defeated.

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2 0 1 4 Apr 24

Having Our Voice Heard - 10th Annual ADAO Conference Recap

Heather and Cam

I always credit Linda Reinstein from the Asbestos Disease Awareness Organization (ADAO) with giving me my voice. Four years ago, it was Linda who started me on this crazy journey of speaking and sharing my story with others when she approached me to speak at her conference.

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2 0 1 4 Mar 17

From Awareness Grows Hope - Kicking Off Asbestos Awareness Week 2014

Heather

Every year, 3000 people are diagnosed with mesothelioma.

In 2005, I was one of them.

I had never worked with asbestos, but my father did, and secondhand exposure as a child was enough to make me sick decades later. I was lucky, able to make a miraculous recovery through surgery. But I experienced for myself the fear, pain and suffering this disease can cause, and I believe I’ve found my calling fighting for victims of mesothelioma and other asbestos diseases.

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2 0 1 4 Feb 20

Smashing Fears & Building Traditions - Lung Leavin' Day Recap

Throw your fears to the fire

Eight years. I still find it hard to believe sometimes.

That first year—the one-year mark of Lung Leavin’ Day—it was just Cams and me, outside by a little bonfire on a freezing cold night, writing our fears on a plate. Mine had everything to do with cancer, since surgery was so fresh in my mind. I didn’t read his plate; they’re his fears to smash, not mine. When we were finished writing we both took a breath and shattered our plates in the flames. With that, a tradition was born.

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2 0 1 3 Nov 25

The November Blues

Heather & Lily

November brings out the best in many people. The spirit of Thanksgiving is everywhere; on social media, friends are posting 30 days of thankfulness. I love this idea and have participated in it many times since I have much to be thankful for. But to me November is not a month I look forward to; in fact, I pretty much dread it every year since 2005. November means winter is starting, the days are shorter, it’s colder, it’s grey and dreary, and if we don’t have snow, we have rain and fog. My yard is all soggy, brown and depressing-- quite a change from the colorful summer and fall with all my many flowers blooming.

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About Heather

  • Wife of Cameron Von St. James and mother to Lily Rose
  • Pleural mesothelioma survivor
  • Treated by Dr. David Sugarbaker, world renowned mesothelioma expert and thoracic surgeon
  • Self proclaimed “Poster child for hope after mesothelioma” for those suffering from asbestos disease
  • Continues to live with strong faith, abundant gratitude and an unbeatable will to live each day

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