Posts about "Mesothelioma Applied Research Foundation"

2 0 1 5 Oct 27

Making Strides for Mesothelioma Awareness Day 2015

insert alt text

Mesothelioma Awareness Day, established by Mesothelioma Applied Research Foundation volunteers in 2004, has been the driving force behind the movement to bring more attention and funding to mesothelioma.

Continue Reading Email Tweet Share
2 0 1 5 Feb 26

Breathing New Life Into Lung Leavin' Day

Lung Leavin' Day 2015

Every year following Lung Leavin’ Day, I write a recap of the evening. This year I wanted to do something a little different. I know the event has a huge effect on people, and in the last couple of years people have shared their feelings about the night with me. I thought I would ask a few friends about their thoughts on the tradition and share them with you.

Continue Reading Email Tweet Share
2 0 1 5 Jan 8

Reflecting on the "Firsts" of 2014

Von St. James family golfing

As a society, we put a huge emphasis on our children’s “firsts”: baby’s first tooth, baby’s first steps. The first birthday, the first day of school. Oh my, how I remember that day with Lily! So many of her firsts were milestones simply for the fact that I was not supposed to be alive to see them. I treasured each of those firsts, and marked the occasions with pictures and videos. I even still have her first tooth somewhere.

Continue Reading Email Tweet Share
2 0 1 3 Oct 16

Mesothelioma Awareness Day Recap - Be a Voice for the Victims

Mesothelioma Awareness Day at the Today Show

September happens to be one of my favorite times of the year-- not only because the weather is usually picture perfect and the leaves start turning, but every year my mom and I go to New York City for Mesothelioma Awareness Day. This was our 3rd trip and each year we love it more and more. It’s becoming a tradition for my mom and I to arrive a day early, enjoy a nice dinner and get ready for the bright and early wake up time of 4:00 am to get to the plaza of the Today Show by 5:30. We get there so early to secure a good place around the barriers to be seen by the hosts. NYC at 5 in the morning is amazing, it’s actually quiet with the occasional roar of a truck engine in the distance. By the time we are allowed onto the plaza for the taping of the show, there is a line down the block of people wanting to get noticed. All of us who were there for Mesothelioma Awareness Day were dressed in our bright yellow “Cure Meso” t-shirts and grouped together so we would be noticed when the hosts of the show came around. Strength in numbers!

Continue Reading Email Tweet Share
2 0 1 2 Aug 16

A Sense of Community and Renewed Hope

Community and Hope

Community—a sense of community and renewed hope. That is what the overwhelming feeling was at the Mesothelioma Applied Research Foundation's (MARF) annual symposium on malignant mesothelioma. The symposium took place from Wednesday July 11th to Friday July 13th in Washington DC—no where else can you have, all in one room, world-renowned doctors, other medical staff, lawyers, patients, their loved ones and caregivers, as well as those who have lost members of their family to the disease. Everyone came together for a single cause, to help find a cure for mesothelioma. What a very powerful testament to what the MARF is about.

Continue Reading Email Tweet Share
2 0 1 1 Sep 27

Mesothelioma Awareness Day – In The Company of Hope

It was upon attending the Mesothelioma Applied Research Foundation’s annual Symposium on Malignant Mesothelioma back in June, that I first learned of Mesothelioma Awareness Day and the foundation’s plans to descend on New York City in September. As a survivor of the disease myself, the idea intrigued me but I didn’t really think it was going to be realistic for me to go.

Continue Reading Email Tweet Share

About Heather

  • Wife of Cameron Von St. James and mother to Lily Rose
  • Pleural mesothelioma survivor
  • Treated by Dr. David Sugarbaker, world renowned mesothelioma expert and thoracic surgeon
  • Self proclaimed “Poster child for hope after mesothelioma” for those suffering from asbestos disease
  • Continues to live with strong faith, abundant gratitude and an unbeatable will to live each day

Read more about Heather »

With Heather

Google+ Twitter

Free Mesothelioma Information Packet

Receive a comprehensive mesothelioma packet free of charge within 24 hours...

Yes   No

Get Started

Featured Authors

Staff Writers





Mesothelioma Treatment Alert Program

Please fill in the form below to request FREE Mesothelioma Treatment Alert information. It will be sent to you within 24 hours.

Yes No