Heather Von St. James

Heather Von St. James

Courageous mother, wife and survivor of mesothelioma cancer.

Posts about "LungLeavin' Day"

"We cannot tell the precise moment when friendship is formed. As in filling a vessel drop by drop, there is at last a drop which makes it run over; so in a series of kindnesses there is at last one which makes the heart run over."
-James Boswell


Debbie and I
Debbie & I finally meet!

Friends

I cannot remember the moment I became aware of other mesothelioma warriors around the globe, but, sometime in the last few years, my friendship base grew from a couple of people I knew from Boston to many people from all over the world—the United Kingdom, Australia, Brazil; the list goes on and on. A few in particular stuck out because of their fierce passion against this disease and what it has done to their lives and to others’ lives as well. “Turn anger into action,” they say. Sadly, many have passed, succumbed to this dreadful disease and mourned by people worldwide. Many are doing well, fighting hard, and making it known that they won’t give in. I was lucky enough to meet one of these brave women this last weekend when my husband and I attended the Asbestos Disease Awareness Organization’s annual conference in Los Angeles, CA.

Debbie Brewer is a tireless mesothelioma warrior in England. We became Facebook friends about 3 years ago and we both had been aware of each other for months before that. Debbie and I have a lot in common; I nicknamed my tumor Punxatawny Phil and she nicknamed hers Theo; we both sought out rather extreme mesothelioma treatments for our disease and we both had great success with them. The friendship grew through the last few years; I would cheer her on when she was giving speeches all over the UK about her battle and she would do the same for me when I was asked to share my story at various conferences. When I found out she was to receive the The Alan Reinstein Award for her commitment to education, advocacy, and support to the many people she comes in contact with, I was elated! It also meant that we might actually be able to meet after all this time since I planned on attending the ADAO Conference as well.

Tags: LungLeavin' Day, ADAO, Asbestos, MARF, Mesothelioma, Mesothelioma Diagnosis, Mesothelioma Treatments

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2 0 1 2Mar22

I have Cancer? Part 6: The Surgery

Heather ready for surgery

My surgery was scheduled for Thursday, February 2nd, 2006, at 7:30 a.m. Cameron and I arrived in Boston on the 31st of January to get settled in and get all the pre-op testing done. All of that was scheduled on Feb 1st. It was a whirlwind day.

Appointment with Dr. Sugarbaker first, then blood work and more tests at the diagnostic center, the EKG Lab, CT scan, x-rays and another appointment with Dr. Sugarbaker at the end of the day.

Tags: brigham and women's hospital, lungleavin' day, mesothelioma

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2 0 1 1Dec02

I have Cancer? Part 5: A Bittersweet Christmas

heather lily christmas

Our baby's first Christmas, 2005- It was supposed to be memorable, and it was, but for all the wrong reasons. We did everything we usually do; Christmas Eve with my husbands family, but despite the festive air of the season, no one could ignore the dark cloud hanging over us. To this day, when I decorate my Christmas tree and I put the "Baby's First Christmas" ornament on the tree, I do so with a bittersweet feeling.

Who Would Care for My Baby Girl?

We had just a month to prepare for the upcoming surgery, and iron out details... just a few small ones, like where were we going to stay in Boston while all this was going on? And who would take care of Lily? I was to be in Boston for at least a month, and bringing her with us was not an option. We could not care for both her and me at the same time. My husband's family offered to watch her and take turns, but that didn't set well with me.

Tags: brigham and women's hospital, international mesothelioma program, lungleavin day, mesothelioma

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