Posts from 2013

2 0 1 3Apr29

FACTs from a Survivor: How the FACT Act Affects Mesothelioma Victims

How the FACT Act affects mesothelioma victims

I was speaking with a friend of mine recently about writing, as she's writing a urban fantasy short story, and the subject of blood types came up. You see, I always remember my blood type, B Positive, because that’s how I always strive to be. Unfortunately, sometimes I fall short of my goal. Today is one of those times.

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2 0 1 3Apr03

ADAO Conference 2013: A Truly Global Mission

Cam and Heather at the 2013 ADAO ConferenceCameron

This is the third time I have attended ADAO’s Annual International Asbestos Awareness Conference. I still remember how I instantly felt like family when I attended my first conference in Atlanta, GA in April 2011. I found myself at home with others whose lives had been affected by mesothelioma and asbestos. It was wonderful sharing my experiences with others and hearing their stories as well.

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2 0 1 3Mar15

2013 Mesothelioma Applied Research Foundation Annual Symposium

Cam & Heather at the MARF SymposiumCameron

Four years ago, Heather went to her first Mesothelioma Applied Research Foundation (Meso Foundation) symposium. That first symposium left a lasting impression and changed her life. The opportunity to meet with other mesothelioma warriors, their families, caregivers, and medical experts in mesothelioma treatment and research had a positive impact. It was the opportunity to meet with people who know what a mesothelioma diagnosis means. These new friends quickly became family.

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2 0 1 3Mar07

Faith Through Cancer - I am a Lighthouse

I am a lighthouse“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future."Jeremiah 29:11

This scripture was on a card sent to me by a friend shortly after he found out I had cancer. When I opened the card, and read those words, I sobbed. I sobbed because it was EXACTLY what I needed to read and needed to know, that I would be ok. It was those words that got me through some very scary times in these last 7 years. Those words were, and still are, my lifeline.

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2 0 1 3Feb06

Lungleavin Day 2013: Generosity Abound

Lungleavin Day plate smashing

The 7th Annual Lungleavin Day is all but a memory now. The remnants of a great night are all around; the shards of plates around the cold coals of the extinguished fire, the ice lanterns are nothing more than globes of ice, the dining room table still has the serving dishes used for the night sitting on it, all cleaned and waiting to be put in the storage bin until next year. The silent auction donations are still in their places and phone calls have been made to all the winners. This week will be spent delivering them and picking up the donations so generously made for mesothelioma research. What can't be seen is the gratitude that my husband, daughter and I have in our hearts for all of the love and support that so many have given us.

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2 0 1 3Jan17

F.E.A.R.

Heather & Cam on Lungleavin Day

“Courage is resistance to fear, mastery of fear, not absence of fear.”-Mark Twain

I hear it often from people, how brave I am and how much courage I have. Sometimes I just have to laugh, because, going through what I’ve been through with my mesothelioma battle, I don’t feel very brave. At times, the fear was so overwhelming, all I could do was cry out to God to help me. I would love to say that through the last 7 years, I’ve learned to conquer my fears. After all, Lungleavin Day, our celebration of the anniversary of my extrapleural pneumonectomy surgery, is all about overcoming fears. But I still have my moments, more often than I would like to admit. I have the usual fears creep in, my “scanxiety” I’ve blogged about before, little pangs of fear before I fly, but the biggest fear I struggle with is the fear of something happening to my daughter. This is something that has plagued me since she was born.

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About Heather

  • Wife of Cameron Von St. James and mother to Lily Rose
  • Pleural mesothelioma survivor
  • Treated by Dr. David Sugarbaker at Brigham and Women’s Hospital in Boston
  • Self proclaimed “Poster child for hope after mesothelioma” for those suffering from asbestos disease
  • Continues to live with strong faith, abundant gratitude and an unbeatable will to live each day

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